Links and resources.
Below you will find a small selection of resources which may be helpful to some of our patients and those who advocate for them.
Low Vision Resources
Listen to Andrew Leland's excellent TED talk about his experience of losing his vision due to Retinitis Pigmentosa
https://www.ted.com/talks/andrew_leland_blindness_isn_t_a_tragic_binary_it_s_a_rich_spectrum?utm_campaign=tedspread&utm_medium=referral&utm_source=tedcomshare
Ulster University has some great information to help people understand the information and terms used by eye care professionals
https://www.ulster.ac.uk/research/topic/biomedical-sciences/research/optometry-and-vision-science/vision-resources/parents
CVI Resources
CVI Scotland is a fantastic resource co-created by people with CVI, parents of children with CVI, and vision professionals
https://cviscotland.org/index.php
You can find an inventory of strategies for supporting people with CVI on the Ulster University website
Check out Professor Rachel Pilling's blog. These resources would be great to share with teachers and others who need a 'quick guide' format of information on CVI. I particularly like "The tale of the Curious Mechanic" and "Professor P's two page read about how we see".
Resources for people with Intellectual Disability
Coming soon ….